Big Day Developmentally Speaking…

My son, Oliver, is two years old but functions between a 9-12 month developmental age. Oliver is technically undiagnosed, but extensive testing has shown he has mitochondrial dysfunction. Oliver receives occupational, physical, speech and feeding therapy,  has a therapy coordinator and a music class that we do together. Oliver turned two in July. It is SO HARD when a special needs child has a birthday. Their actual age is suddenly in direct focus, it can’t be ignored. Shopping for birthday presents is so frustrating. He is unable to do the things a child his age can do. Oliver can’t stack blocks, doesn’t put toys into containers, and he has no speech. But he’s happy! And adorable. We don’t think about what he can’t do on a daily basis, we focus on the little triumphs. Its just hard sifting through the toy store inventory trying to find things that fit him!

Generally Oliver will have a lull in progress before making huge leaps in his developmental skill set. We’ve been experiencing one of those jumps for the last couple of weeks.  Yesterday, Friday, we started the day with a Music Together Class. In our class are parents with children Oliver’s age. The kids run around on their chubby legs grabbing egg shakers and movin’ to the music. On the first day of class Oliver was very reserved and would have NOTHING to do with an egg shaker. Today, six weeks later, for the first time he picked up an egg, shook it, squealed in delight and dropped it. Then when it was time for the music exploration portion of the class, he crawled right into the melee of kids and instruments shaking a tambourine here and whacking a drum there. I was so moved. When a typically developing child picks up an egg shaker its no big deal. When someone like Oliver picks up an egg shaker its a G.D. miracle. It feels like insanity to be so humbled by such a small action. Then after music class we headed to feeding therapy where he did beautifully! His therapist tried some new techniques with him and he responded with flying colors.

Our lives are bursting with blessings, sometimes they are as small as an egg shaker. I have two typically developing children as well, and I’m thankful for my little Oliver being just who he is. My other children are loud, strong in will and body, and uncontainable. My Oliver is small and gentle and at two years old still the happiest baby I have ever met.

 

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